ARPA-H launches $160M effort to develop custom gene editing drugs

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ARPA-H invests $160 million to make custom gene editing routine | STAT

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STAT Plus<br>Biotech

ARPA-H launches $160 million effort to develop custom gene editing drugs

Program will fund seven groups over five years in hope of Baby KJ-like successes

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Jean-Christophe VERHAEGEN / AFP via Getty Images

By Jason Mast<br>July 9, 2026

General Assignment Reporter

Jason Mast

[email protected]

Jason is a general assignment reporter, with particular focus on genetic medicine and rare disease. Confidential tips can be sent on Signal at JasonMast.77.

ARPA-H, the U.S.’ “moonshot” agency for health research, announced Thursday that it will spend up to $160 million to push forward custom gene editing treatments for a spate of rare diseases.

The program, called THRIVE, will back seven different teams pursuing various groups of conditions affecting different organ systems.<br>Advertisement

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STAT Plus: FDA chiefs offer roadmap to expand custom gene-editing treatments like Baby KJ’s

Each team has a deadline of starting clinical trials by year three of the program, although some may start much sooner.

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biotechnology, CRISPR, gene editing, Gene therapy, HHS, rare diseases, STAT+

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Jason Mast

General Assignment Reporter

Jason is a general assignment reporter, with particular focus on genetic medicine and rare disease. Confidential tips can be sent on Signal at JasonMast.77.

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